“We must begin to tell our young
There’s a world waiting for you
This is a quest that’s just begun”
~ Nina Simone, Young, Gifted and Black
By the age of nineteen, I had worked three jobs: the first, as a “fetch boy” in a cramped room at CMC Motors in Kisumu where all I had to do was wait for an order to be processed, and then run around looking for the spare parts required using the reference number; the second, was as a salesperson for Britannia which involved standing in a supermarket all day and trying to push their digestive biscuits to unwilling buyers; the third, general trade merchandiser for Unilever Kenya where I had to get into people’s shops and put up a display for the Unilever products.
I hated all three.
The first, I hated because I was seventeen and fresh out of school, having only finished my KCSE. I wanted to do other things that kids my age were doing – having fun, playing defiant and being reckless – but my strict, authoritarian mother would have none of that. The second, because they never paid me, not even to date. The third, well, I hated it because the supervisors and the management barked down at us and we all ran with our tail between our legs.
Then I joined the University of Nairobi to pursue a degree in law. For a moment, as a fresher trying to figure out stuff, my parents tried to make me study something else. My mother, who was more convinced that either I would make a good doctor or a better nurse than I would a lawyer, tried to persuade me to switch lanes. I was adamant. I wanted to fight for human rights, be the defender of social justice and, well, become rich. And for the next two or three years, I stuck to it and made strides; I volunteered for legal aid, I tried – albeit briefly – to participate in the moot court, I ran for office and won once, lost once.
Then during the end of my third year, I struggled with depression and anxiety. I folded into myself and became more of a recluse, missing classes and barely talking to anyone outside my small circle of friends. I listened to Suicide Silence, Dimmu Borgir, Cannibal Corpse, Children of Bodom and all the bands that either told me I deserved to die or I had nothing worth living for. And for a while, I believed them. I hated myself, I hated my family, I hated my friends and I hated, basically, everything.
My existence was characterised by the absence of colour.
I was in an abyss, surrounded by total darkness and there was nothing to hold on to even if I tried. The voices around me mocked me and however much I wanted to shut them out, I could not.
A friend, one of the few who understood what I was going through, told me to see a therapist. He would foot the bill and take care of anything else that was required. He had been there before, he told me. Another, one who I was closer with than the first, told me,
“You are not depressed. You just like whining like the rest of your generation. You are so entitled and when you are not given what you want, you act out.”
Like the rest of your generation.
Those words, I must admit, still ring in my head each time I think about that period. Those words – and the fact that I hated being on Xanax and Prozac – made me doubt if therapy really worked. I went in for two sessions and left. I never told anyone about it.
I told myself that I would not be like the rest of my generation. I would not whine, I would not tell anyone my problems, I would not say I needed help. I closed myself off even more, making sure to lock out everyone. I became irrational, erratic, angry and impatient. I fought and argued with everyone around me. I blocked close friends who tried to reach out. The world had wounded me and I did not want it coming to tell me that it wouldn’t do it again.
No one should live that way. No one should be made to.
Sometimes, the only way to confront pain is by interpreting the world differently. By looking at the world – people, events, ideas, et al – in a way that only you can comprehend. At that time, I found other escapes. The only one that makes sense to mention now is reading and writing. I read Virginia Woolf, Edgar Allan Poe, Sylvia Plath, Toni Morrison, James Baldwin. And I wrote letters to the world; ones they would never see. I wrote stories that made no sense to no one else but me. That was my way of interpreting the world. Of taking it all in. Of processing the events around me. Of living.
It was in that period of a low-high when I found my third job. An administrative assistant position in an organisation that dealt with human rights and international humanitarian law. The position, if I am to say now, required barely nothing from me. I was never assigned anything in the way of work and the stipend I got was actually decent. I moved out of campus and got my own place.
Freedom, one thinks.
Loneliness, like the low wind at the foot of the mountains that carries with it cold that finds its way into the bones, crept in. Whereas in campus, even if I did not associate with many people towards the end of my stay, the mere thought that they were available to observe, kept me afloat. The fact that I could be my weird self and knock on someone’s door and talk to them for a few minutes then go back to my room, was a reality that no longer existed. That option was gone.
I folded into myself more, barely meeting or talking to people.
Then, slowly, I came out of that slump and started talking to and meeting new people. But almost everyone I knew was battling some form of depression, some ‘demon’ that they were struggling with, or some stagnation that caused them stress.
Is it just our generation?
I have heard it in person so many times. Seen it on social media. Read it in books. Heard it in music. Watched it on TV. People who occupy certain positions of power or influence saying how this generation – the millennials – are just a bunch of lazy, entitled, whiny, spoilt brats. I have seen them attack us for our political views, for our forms of expression, our existence, our taste and preference, our freedoms.
I am a millennial, I am aware, but I have never thought of myself in the lens described by these people. I would never regard myself as lazy or whiny. Just because I do not believe in the ideologies propagated by an individual loved and adored by people in my father’s generation, does not mean I am not appreciative of their contributions to the freedoms I enjoy now. Or, more harshly, know nothing about politics, an assertion that I have heard so many times when I, as a young Luo man, state openly that I do not believe in Raila Odinga’s candidacy in the presidential elections. In such moments, I have been accused of ‘selling out’ or being ‘ignorant of what he (Raila) has done for the Luo community.’
I am not.
I simply recognise that despite his contributions and service to the Kenyan society, I do not share in the belief that he has to occupy the office of the presidency to be the statesman that he already is. Unlike my father who believes that he is entitled to the presidency more than anyone else in this country, I simply think that we exist in a system that blurs the reality and makes us believe that those two (the Kenyatta-Odinga dynasties) are our only options. I believe that the options are numerous and we exist in a flawed society that eliminates anyone who threatens to tinker with the pseudo-balance created by these two, pivoted by the irrational belief in tribe that we have. And who suffers? US. WE. YOU AND ME.
“You are just a child, you know nothing about politics.” He tells me.
And, just because I believe that people should be allowed autonomy and free will, does not mean I do not understand how religion and morality work. The fact that I believe people should be allowed to express themselves in the way they feel brings out the best in them. I do not believe in the unnecessary sanctioning of forms of expression that people like Ezekiel Mutua are so eager to commit. People whose deliberate intentions are to deny and erase narratives of minority groups like the LGBTQ. People who would rather police freedoms than find ways to create a world where coexistence is a reality and mutual respect is achieved.
That does not mean I am clueless about the limits to certain forms of expression. Furthermore, if we had an efficient system of governance, we would be able to discern and distinguish the unruly, uncivilised and ungovernable from people who are genuine in their pursuit for freedom to exist in the way they truly know best. To people whose expressions do not interfere with other people’s existence. An unjustified limit to an expression, I believe, alienates and frustrates the members of society for whom that expression is vital.
The conclusion, mostly by members of the Generation X or the Baby Boomers, that millennials are lazy and entitled is an unfair generalisation that seeks to vilify a generation struggles to keep up and stay afloat in a world that moves so fast. There is an information overload from all the technology that we interact with. And in the age of social media that relies on us keeping up with – sometimes – faux lifestyles of celebrities and friends who, by virtue of their access to certain spaces, make others feel as if they are not doing enough. Not living enough. Not good enough.
And yet, and yet.
Amidst all this, there is the pressure from our parents (Gen Xers, Baby Boomers) to achieve, to be better than the rest of your generation. To stand out. To compete. The whole idea of being the best even if nothing else remains afterwards, to fight even when you are left with nothing at the end of the fight, is a scourge planted amidst us by the same parents who would rather call our generation lazy, entitled and whiny.
No, we are not any or all of that.
We are the children of the brave new world.
To be a millennial is to believe in freedom. To acknowledge that the ideals that make up the society should not erase or ignore certain people whose existence are in/within/revolve around the same society. It does not mean I am ignorant of the moral fabric of the society, but it allows me to believe in recalibration or readjustments of the society and to re-evaluate what works to include the largest number – as many as everyone – into this society. To ignore binaries. To constantly avoid a monochromatic, single-lensed view of life. To me, as a millennial, the hope is to exist in a kaleidoscopic society where each and every one of us is represented on the canvas of life. Not to be erased. None of that. Instead, to be acknowledged, to be respected and valued, to be – alive.
Depression Is an Illness of the Soul, and My Faith Failed Me
When we grow up in a religious nation, a huge part of our identity rests on religion/faith/God, whatever you wish to call it. When this is shaken, the centre cannot hold, and we crumble.
In 2014, a friend confessed that he had been battling depression and had been on anti-depressants for a number of years. This friend is one of the most brilliant minds I have ever met, he seems to have it all together, and is admired by many. This confession took me by surprise because I never could have imagined that someone like him would be struggling with depression. I voiced my doubts to him; I told him he seemed okay, he didn’t look like it, was he sure? My naivety on the subject was clear. But that confession did for me was life changing, and took me on my own journey to face my own demons.
What I knew about depression was that people who suffered from it were sad all the time. That’s it. However, since that conversation, my understanding has changed dramatically, especially suicidal depression. Looking back at my life in the months prior to that conversation, and as I read and educated myself on mental health, I concluded that if there is a spectrum on depression, then I am somewhere on it – despite my quick reassurances to my friend that day. I have days when I am overwhelmed with life, I question my existence and can’t find a good enough reason for it. It leaves me with a profound emptiness, which I do not know what to do with but sit with it, cover myself with and stew in it.
They say depression is a mental illness, but I think it is more than that. It is an illness of the soul. The soul as defined by Wikipedia is the “incorporeal essence of a living being. It is the mental ability of a living being: reason, character, feeling, consciousness, memory, perception, thinking, etc.” ‘Incorporeal’ means without a physical body, presence or form. Therefore, it makes sense to me that it is a sort of malfunction of the soul.
I have heard numerous psychologists rightfully say that some symptoms of depression include not enjoying the activities one used to, social isolation, and difficulty getting out of bed. On that last point, it is not the usual oh-my-god-its-Monday-I-can’t-get-up, rather it is that you literally and inexplicably cannot get out of bed. The thing about sleep in this case, like many of life’s vices including alcohol and drugs, is that for a moment you forget everything and do not exist. Getting out of bed means facing yourself in this mess, and it is too much.
On some days, the mess falls to the background, and there you are – smiling, getting work done, having a social life, being productive. However, the mess still clings to you, it never leaves, hence the yo-yo effect of: today I’m fine, next week I’m back in the thick of it. Sometimes this cycle is weeks or months long. And no, talking to someone does not seem to help. You don’t even want to talk to anyone, even a good friend. I lost a great friendship during one of these periods because I couldn’t bring myself to pick up phone calls as I felt I couldn’t do it.
As a nation that is religious, or spiritual if you will, depression can be closely linked with God. Let me explain. Like most Kenyans, I have grown up going to church. I grew up Catholic and even served at the altar. Every Sunday, my mother would wake us up, scolding us when we were not moving fast enough to make it for the 9am service. The struggle to get up and get ready to go to church, with all the rushing and scolding, always felt like a punishment.
If you are Catholic, then you know how ceremonial the mass is. Because everything is structured so tightly and unfolds in the same way every time, after attending for years you can be present in the body but be totally checked out mentally during mass. So because I knew the flow, I had gotten used to zoning out after the second reading when it was time for the priest to deliver the sermon. Around me were people dozing off, so I thought zoning out was better than blatantly sleeping in church. Besides, what if my mom’s friends from Jumuia saw me and told her?!
In any case, we sang, “Jesus Loves Me” long before we could comprehend what that love looks like. We were taught to pray and love God more as an obligation than because we meant it. We were taught to profess our love to God – more than actually understand it. Why should we love Him? Because he made us, His son died on the cross for our sins, because we hope to go to Heaven when life on earth ends. Doesn’t the Bible teach us to instruct our children in the way of the Lord and they will never depart from it? So, we grew up believing all of this before we had time to question any of it. We are told that as children of God, we are special and are here for a purpose.
It reached a point when I could no longer carry on with all of this simply out of obligation. In 2015, I started questioning this whole notion of a God-given purpose after going through a year of overwhelming hopelessness. I wanted to know for myself who God was, if He exists, if he loved me, what He wants from me and so on. I was really going out of my mind at this point because I was having an identity crisis. Relying on the idea of God loving me because the Bible says so wasn’t enough. I needed to know for myself, and I didn’t. The reason this is important is because when we grow up in a religious nation, a huge part of our identity rests on religion/faith/God, whatever you wish to call it. When this is shaken, the centre cannot hold, and we crumble.
I didn’t know just how huge a part of my identity God was until I was shaken and felt I had lost myself. The death in my life came from a loss of faith. It was time to get out of the childish way of obligatory faith, and really believe as a choice. But the truth is, I couldn’t find my footing. Feeling worthless, I began seeking out answers to my existence. I’m sure to those around me, I looked fine and had accomplished a lot, but inside I was stuck. My whole life felt like a lie the moment I wondered what my purpose in life was. Answers on the mystery of God, on how we should not question His ways were no longer good enough. It is like when someone dies, and people quickly say that His will is being done. Such answers didn’t cut it for me any more. I wondered, was I an agnostic, a nihilist? Are all depression sufferers just pessimists? It was the beginning of an identity breakdown that has brought me to my knees and left me there. I don’t know who I am, and the personality and character attributes ascribed to me by others feel foreign.
What I know is that on some days, it is like I am trapped in limbo, neither alive nor dead. I wonder why I am wrapped in this mess, never moving forward or backwards. It is like you are sitting on the edge of a cliff and you can’t jump off nor retreat to safety. This is what depression looks like to and for me. The anti-depressants you might be prescribed ensure you keep retreating to safety while suicidal ideation ensures you take that leap.
When I think about people I know or I know about who have died by suicide, including Millie Kithinji, Stephen Mumbo, Robin Williams, Anthony Bourdain, Kate Spade, Avicii, several students in Kenyan universities… I am certain of one thing. Prior to their deaths, they were on this cliff, like so many of us are. Questioning their existence, even those who seemed to have it all – money, fame, love, power. Even with all this, they must have asked: who am I? They must have felt guilty and ashamed at the same time.
I know it sounds selfish especially to those of us struggling financially. You wonder, this person “had it all” and still ended their life. And so, people call them sinners and criminals for ending their lives, and we reach for the refrain we have always been told since childhood – that life is precious and a gift from God, even when we don’t feel it and when our cruel society shows us our lives don’t matter, especially if you are not rich and not politically connected.
Take Millie Kithinji, who died by suicide this March. This wasn’t a spur of the moment decision for her – for a long time, since around 2017, she had been begging God for strength and grace to carry on through the trials she was facing, going by her Facebook posts. She was unemployed with a young daughter, the father of her child had abandoned her, and she was struggling to make ends meet.
The spiral was slow but steady. We don’t know what else was shaking her identity, to the point where she wondered what she was doing alive instead of dead. Who knows how many times she came close to ending her life, but perhaps the thought of her daughter kept her going, until this last time. Ultimately, ending the pain took the upper hand to holding on for the sake of love.
Another recent case was Stephen Mumbo, who was a star employee at audit firm Price Waterhouse Coopers (PwC). He was intelligent, a family man and a committed employee, he was put together and had everything going for him. The death of his mother shook him, and perhaps other things we don’t know. Piecing his last moments alive reveals a trail of work-related stress and a man who was broken long before he fell to his death.
Those like Millie and Stephen were on the cliff, hurting, feeling the burden of their mess and how all the love from their families did not count in that moment before they jumped off the cliff. “They will be better off without me,” they must have thought.
When you are on the cliff, you sit there until jumping is the only viable option to end the pain. It is the only option because you have retreated to safety many times (perhaps from friends who checked up on you, or the thought of loved ones) yet here you are back at the cliff, and the pain is too much. Yes, suicide is a choice. It is the only choice in that moment, and if you have ever come close to jumping, then you understand. Granted, I still don’t have answers, I can only describe what my depression looks like in hopes that someone out there might see themselves through this. You don’t have to know my name, gender, age, or educational status to resonate with me. Because the truth is that a lot of things will bring you and your mess to the edge of the cliff. Mine is my identity crisis. What you can bear might be too much for another person. What has brought me here is a mess perhaps easily cleaned up by somebody else. What will bring you here is a mess that I could easily discard. What is your mess? Are you sitting on the edge of the cliff too?
If you or someone you know is experiencing depression or suicidal thoughts, or if you want to know more, reach out to Befrienders Kenya on +254 722 178 177, or the Meshack Samson Foundation, at +254 715 713 212. You can also find these organisations on Facebook.
Land, Dance and Finding a Way Through This Painful Life Together
Trusting one’s body, and one’s experience of the world is not celebrated or even tolerated in the formal education forced on Africa through missionary and colonial education. School and religion alienated me and us from ourselves, and from the Earth.
For British colonisers, the lands that now form Kenya were a space that needed to be traversed on the way to the ‘Pearl of Africa’, Uganda.
The Pearl of Africa was a place where kingdoms, a form of governance recognisable to colonisers from a kingdom country, existed. It was the place where the long-sought source of the Nile was found, and with it the assurance of outwitting challengers to the control of Sudan and Egypt. In Uganda, on top of the cotton varieties they found, the British saw potential for commercial cotton production. A place rolling with greenery, lots of rain, lakes and rivers, teeming with flora and fauna. Winston Churchill visiting in 1807 recommended that Britain should “concentrate on Uganda” whose people, climate, scenery and vegetation were “different to anything else in Africa”, and his statement reaffirmed the title of Pearl that had been given to Uganda earlier by other colonial scouts, Speke and Stanley.
However, to get to the Pearl there was the problem of a strip of coastal lands controlled by the Sultan of Zanzibar (and having had numerous other controllers in centuries prior), and the vast lands and peoples in between the coast and the prized kingdoms. No such fancy names as Pearl were reserved for what was to become Kenya and Kenyans. We were in the way. When the Uganda Railway (note the name), proved expensive, the lands and people that now form Kenya were dispossessed of their inherent value and of themselves, made objects, and turned to profit-making to enable this venture.
This was unseeing violence. Disembedding violence. Dispossessing violence. Appropriative violence. Thingifying violence. It must do something to you to know that you are only a throughway to a thing, body or place more desired. Your value only tied to enabling arrival elsewhere.
The first violence remade land into an inert source of potential capital to be realised through exploitation by a colonial State, and now by a post-independent and still colonial State. Life was rethought dead, chopped up and offered at a cheap price to profit settlers, who were producing value, to enable the journey to the Pearl. It was violence peoples’ bodies, being-ways, knowledge-ways, economies, cultures, and psychologies, on their embodied and unembodied earth relations, and on the interrelationships amongst them.
The dispossession and appropriation that birthed the Kenyan State in the late 1800s, did not end with flag independence in 1963, but was reinforced, frozen, made ‘State-ic’.
Peter Ekeh helps me understand how. In a theory of two publics which I think of as the two Africas, the psychological disruption of Africans who participated in the colonial system caused an unsettlement. To regain equilibrium, these unsettled Africans attempted settlement by being better at being the coloniser than the colonisers were. They regained a kind of psychological balance by being better at performing violence than those who first performed violence on our spirits, human, Earth and ancestral.
This goes on even today. Newspaper headlines regularly detail the numerous ways in which lands and bodies turned into things are appropriated and made disposable for the benefit of the few in State. It happens so frequently and so efficiently that we are numb, frozen, as we watch and hear play-by-play accounts of who can violate us more, like commentary in a football match.
Slowing down enough to feel the pain
Violence hurts. Violence injures. One common response to violence is to brace oneself and keep moving. After all no use in crying over spilt milk, right? And there is so much more that needs doing, who has the time to feel? Not feeling is a powerful protection against potential future vulnerability and violence, and there are times we need this survival. But this does not, cannot, go on forever.
In my psychology study and practice I have come to learn that trauma which doesn’t get processed gets stuck and continues to replay until we acknowledge it and move it through our bodies and psyches. Slowing down enough to feel and witness the pain of the historic and present day violences on our spirits is far from indulgence. Rather it is what enables me, and us, to be resilient and to retain my humanity, pushing back against the actions and forces that would have me be an object with no inherent value. Here is an example:
It is August 2018. I am at a protest and memorial for the 34 humans slain during the Marikana Strike in 2012. This protest is happening outside the South African High Commission in London. Speeches are made, we sing and hold signs. A tall thin man, briefcase in hand, walks past us briskly. After he goes some distance, he turns and shouts, “You already got your independence, fuck off!” I laughed at his receding back.
What I didn’t say was “ouch.” Later that evening I am in a group workshop on racism and colonialism. We are doing some role play, and one man is taking the role of a coloniser. He says this, acknowledging a truth he didn’t even realise, “We took what we wanted, and we left what we didn’t want.”
A dam breaks and I weep. Slowed down, I can breathe my pain – the same one I couldn’t when the brisk walker shouted. In that moment I have the space to create a relationship to my own hurt and pain at the violence we and I have been through and continue to go through. Through the tears a song comes – the same one I had led at the protest: Senzeni na. What have we done? A comrade sings with me.
Even while it is not always easy or comfortable, I have learnt that I need to go through my pain to pick up my power, lest I harden, and also become a perpetrator of appropriative violence, seeking to outdo the one who was first violent towards me.
Seeing with new eyes
When a people are mired in the unseeing dynamics of dispossessing violence, we begin to believe that there is nothing to see in ourselves, our places, our histories after all. So I have to remind myself of all that was unseen, in order to reclaim our value.
British colonisers unsaw us and all who we are. I mean us in the full sense of community: human spirits, embodied and unembodied earth spirits (plants, animals, ancestors, and more). They unsaw the remarkable irrigation systems of the Cheranganis, the wonder of setting life to the rhythm of bee migrations, the beauty of decentralised cohesiveness in various governance systems, the science of making rains, the studied play of producing life from an equally dancing set of ecologies as pastoralists do, the connective rituals with which we ensured cycles of life, incorporating the past, present and future, and so much more.
It doesn’t help that for the majority, our upbringing doesn’t tell us of these lives and lifeways either. I recall my high school geography class for instance, which focused on how we can do more unseeing in the style of those that first unsaw us. “Tropical indigenous forests are uneconomical because they grow in mixed stand [i.e. haphazardly, going by that worldview]. Planted coniferous forest is more efficient as it enables mechanised harvest.” This is true, if your goal is to take without reciprocity. And there is no need for reciprocity where the other is a thing without value. The goal of the coloniser was to take, and to enable arrival and capture of the Pearl without putting back.
I set different goals – reciprocity, rebuilding and reconnecting relationships.
We are not the dregs of humanity. We are not what is not wanted. I am not what is not wanted. I see my self, our selves. I want to always sink deep into the knowledge that I have value. We have value.
Re-membering land as living entity
Trusting one’s body, and one’s experience of the world is not celebrated or even tolerated in the formal education forced on Africa through missionary and colonial education. School and religion alienated me and us from ourselves, and from the Earth. I, and we, learnt to trust only in our teachers and in the state-approved textbooks for knowledge.
In trying to reconnect broken relationships I am constantly re-evaluating my relationship with land and with those with whom I share this Earth – plants, animals, soil, etc. I recollect and learn new practices that reaffirm the intrinsic value and self-possession of embodied and unembodied entities that collectively share the Earth.
I do this by talking to plants and trees, approaching them as the living selves they are, and listening to what they say. Thanking my food for making its way to me. Sitting in silence by water and acknowledging how often we treat water badly. Lying on the Earth and taking the time to really feel how the Earth holds me from my heels to the back of my head, inch by inch.
Appropriative violence empties all of spirithood or personhood, making all living things parts of a machine, a means to an end. Acknowledging that I am held and nurtured by the Earth puts a pause on that lie, and helps me to be present to what kind of interaction I want to have with all my Earth relations. This replenishes my stores of care and value that I then come to the rest of life with.
Building collective power
What does one do when they are stuck? Move. The violence that continues to (re)play out today in ever tenacious forms is a collective violence. As I seek ways to name what happened/happens, and to see, feel and move through it, there is work that must be collectively done to repair the harms inflicted on us. Movement and movements do that for me.
Moving my body and doing so with others through dance is a form of collective healing to unstick the stuck places in order to be well, and to be well with others. Dancing with presence has become a practice to shift and move things that I cannot do only with words.
I also work to build movements that can acknowledge and heal this collective violence so that we can start again from a different place. I combine working for justice with healing in my movement building, and understanding healing to also be justice work. I think this is necessary if we are to avoid the race to outdo each other in who is better at performing appropriative violence. It is a way of rewriting our origin story to begin elsewhere. An elsewhere that acknowledges our value – all of us, human, Earth and ancestral spirits.
An ADHD Diagnosis: ‘My Nights Were Characterized by Racing Ideas, and Days Filled with Failed Projects’
My mind had failed me so many times I could no longer trust the ideas it put forth, no matter how brilliant or mundane they were. The tipping point came after a violent altercation with my cousin, which landed her in hospital and me in the refurbished blue container recounting my life story, and eventually, finding a turning point.
The diagnosis came about seven months ago. I was sitting in the counselling room of the hospital, a refurbished 40-ft shipping container painted light blue. I remember being annoyed by the breaks in the painting caused by the vertical ridges on the walls, and sucked on piece after piece of hard candy to calm down.
After a series of routine questions to get my history, an analysis by the psychiatrist, and several written tests, the verdict was delivered to me. Attention Deficit Hyperactivity Disorder. At first I was skeptical about the diagnosis. It was a strange case of déjà vu, one on which I’d sat in the same position across a psychiatrist two years ago and was given a host of diagnoses: I was told I had major depressive disorder, then affective disorder and then bipolar 1 disorder.
So I prodded the doctor, testing to find out if my symptoms covered a wide scope of diseases, or comorbidities, as the medical fraternity called them. To put my heart at ease, he showed me a TED Talk of a lady talking about her struggle with the condition, and the end of the video, I broke down and cried.
I’ll call the beginning of my visible symptoms as the crash. I’d excelled academically in primary and high school. I was a relentless high achiever, adapting the routine of school life which accommodated my bursts of energy and productivity. I graduated from high school with a good grade and joined university. But campus life came with the absence of a strict routine, and the unravelling at the seams of the thread of my life began.
I dropped out of my course after one semester and was kicked out of the halls of residence after failing to pay accommodation fees, due to procrastination. I resorted to clever methods to hide the absences in school from my parents. To cope, I drank and smoked a lot of weed. My nights were characterized by racing ideas, and days filled with failed projects because I couldn’t map them out; the brainstorm process ended up being crowded by other ideas and my mind couldn’t shut down. Then came the shame and low self-esteem. My mind had failed me so many times I could no longer trust the ideas it put forth, no matter how brilliant or mundane they were.
The first psychiatrist I visited was a referral from a general doctor. I’d arrived at the triage suicidal, struggling to breathe, and paranoid that I was being followed and watched. He prescribed some sleeping pills and handed me a sealed envelope addressed to a private psychiatrist clinic at the Doctor’s Plaza at Nairobi Hospital.
I didn’t feel bipolar – I was told bipolar disorder entailed massive mood swings, and this didn’t quite apply to me – but I accepted the diagnosis as it gave me a semblance of peace. At least I had a reason for my behaviour.
For two years, it cost nearly Ksh800 a day to pay for consultation and medication. Physically, the drugs left me feeling comatose on most days, and demoralised because I was still messy and erratic, but with a Ksh288,000 annual price tag to keep me stable. I sunk further into depression, culminating in a failed suicide attempt.
At the peak of my treatment, I was on a cocktail of seven different pills in the class of antipsychotics, antidepressants, and anti-anxiety medication. They gave me sleep jerks at night and vivid nightmares — eventually, I developed a dependency on the lulling effects of the anti-anxiety pills to help me sleep. The tipping point came after a violent altercation with my cousin, which landed her in hospital and me in the refurbished blue container recounting my life story, and eventually, finding a turning point.
The psycho-stimulants prescribed by the doctor were a relief. I could finally consistently complete my tasks and rein in errant thoughts, but the new ADHD diagnosis was exhausting. I imagined having to explain myself again to my friends about my condition over and over like I’d done for the past two years, and I was hardly prepared for the emotional or mental labour.
ADHD is a condition of limited self-regulation rather than a deficit of attention. A person with ADHD is able to concentrate for long periods of time in a state known as hyperfocus, that is when they are interested. ADHD exists on a spectrum and some people have it worse than others. We all have moments of ‘zoning out’ and procrastination, but for the ADHD individual, their symptoms fall on the extreme end of the scale and can be crippling.
Dopamine is a neurotransmitter that is responsible for a range of functions in the human body including emotional regulation, and motivation to guide your brain to accomplish specific tasks in order to get the desired reward. To use an analogy a psychologist gave – our brains are engines. Different parts initiate and receive tasks, others execute them and help manage one’s routine. Dopamine is the fuel between these areas, but ADHD brains have a deficit of dopamine. The result is that coordination is missing.
ADHD is a highly comorbid condition, meaning it exists with other mental conditions such as anxiety and depression. The emotional dysregulation and hyperfocus often leads to misdiagnosis as bipolar disorder, borderline personality disorder or other affective disorders – like it happened in my case.
The DSM V – a diagnostic criteria by the American Psychiatric Association used to identify mental illnesses, leaves out a key factor of ADHD diagnosis – emotional dysregulation – from its list of symptoms, further increasing the likelihood of misdiagnosis.
While ADHD in children is extensively studied and treated, very little academic literature covers adult ADHD, and in particular ADHD in women, which is complicated by changing estrogen levels that affect the availability of dopamine in the brain at different points in the menstrual cycle. The link between estrogen and ADHD means that at different times of the month, the symptoms get worse and might require a recalibration of medication and more money to cover the cost of drugs.
By the time an adult is given an ADHD diagnosis, their lives are littered with failure because of trying to conform in a neurotypical world, with shame, guilt, broken relationships, and a calcified negative view of themselves as lazy, inconsistent, rude, violent, stupid…the list goes on and on.
As I discovered, conventional therapy is often expensive and limited to brief sessions with the psychiatrist and counselor once a month. Adults with ADHD need extensive help, an almost round the clock treatment in the form of non-judgemental accountability partners to help them form a routine, map out their life and follow through on decisions. In the case of an adult diagnosis, and given the individual demands of everyone else’s lives, such accommodations seem like ridiculous requests and one continues to live with their dysphoria.
ADHD and its treatment is very misunderstood. There are stereotypes such as “We are all a little ADD”, and there’s scepticism over whether or not it’s a real illness. Misleading media coverage about the alleged performance-enhancing abilities of the drugs used in treatment also hinder objective discourse about the reality of living with ADHD. The victims are the adults who continue to suffer, very often without knowing what their condition really is, at the workplace, in school or in their homes.
My life hasn’t completely changed, but it’s a lot better than it was. I have interacted with other adults who also live with ADHD and formed a small support group of sorts. I got back on track with my studies and graduated. Living with ADHD forced me to be extremely honest with myself about what I can and cannot do, who I can be and who I am not. There can be no illusions about my strengths, weaknesses and ability to commit to tasks, in order to avoid that vicious cycle of depression and anxiety.
As for the medication, it is not a panacea. I needed to be honest with myself about this too. It was easy to use the drugs as a crutch and avoid putting in place mechanisms to regulate my behaviour – and then blame mishaps on ‘being off the meds’.
What do I look forward to? More research. Particularly on ADHD and women and how environmental factors, socialisation and biology exaggerates or diminishes how the symptoms manifest. I keep a journal and note down observations on days where something strikes me as odd, and use that to inform my treatment. It’s the beginning of my own personal research, and I hope it can help someone else someday.
To conclude, ADHD is neither a gift nor a disability. We can have no illusions about that. It can make you prone to certain harmful behaviours and may give you some advantages over neurotypical brains, but the labels of gift or disability may prevent us from being objective about its management. But with a little more knowledge, and a lot more empathy, we can create a society where lives are not littered with failures that could have been avoided.
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