I have been a registered nurse for eight years now and have spent two of those working in the United Kingdom. Like many who have immigrated to Britain, the search for greener pastures and working systems brought me here. I had my career figured out and I was sure that turning thirty would herald the dawn of a financial breakthrough, better roles and, if the stars aligned, a family. What I heard on my thirtieth birthday, however, sounded something like, “Happy thirtieth birthday Catherine. And you have breast cancer.”
I have heard people say, I have read, that a cancer diagnosis makes you deaf and dumb, that it stupefies you. I thought they were just unable to express what they felt. Words abandoned me on that last day of May 2021.
It started with a lump in my left breast. A tiny immovable grape-like elf hugging my chest wall and kissing the underside of my breast. It was located in a peculiar place and my General Practitioner (GP – known as a family physician in Kenya), my first point of contact, had struggled to palpate it. My breasts are medium-sized and I did not expect that she would find it difficult to feel the lump. Yet I had had to direct her gloved hands to the place where that little monster was hiding. Close to my heart. Crossing my heart.
On the 31st of May 2021 – the day my nephew turned nine and my elder sister sent me adorable photos of the boy celebrating his birthday – I took a Number 33 bus to the Edinburgh Breast Unit for my appointment with the specialist breast doctor and surgeon at the Western General Hospital where my GP had referred me when I saw her sometime in late April 2021. He started by commending me for detecting the lump as it was quite small and well concealed. Yet I had not been actively looking for it; I was just fiddling with my left breast absent-mindedly when I felt it.
After a thorough physical examination of my breasts, Mr J, as I will refer to him here (male surgeons in the UK are referred to as Mr not Dr, welcome to Britain mate!) did a breast ultrasound. He then focused on my left breast and with the assistance of a brilliant clinical support worker (the equivalent of a patient care attendant or nurse aide in Kenya) my breast became a specimen under investigation. But even as the clinical support worker did her best to distract me, my eyes remained fixed on the screen of the ultrasound machine.
I saw the outline of the lump and the edges looked irregular. Mr J confirmed this and sent me to the mammogram department where a core bilateral mammogram and a fine needle biopsy of the lump were done. My mind kept going back to Kenya though. I wondered how much I would have had to pay for the consultation and for the tests. To be honest, the financial implications would probably have intimidated me enough to ignore that lump.
Just over an hour later, I was sent back to Mr J who broke the news.
“I am sorry that the mammogram shows that there is a small cancer,” he said matter-of-factly. Small cancer? You got to be kidding me! In all my years as a nurse, I have never heard of anything like a small cancer. I have also been a nurse long enough to know that breast cancer kills more women than cervical cancer.
I will be turning thirty tomorrow and you tell me that I have breast cancer? I went through a rough childhood and stormy twenties only to crown it all with a bloody cancer diagnosis at thirty? These thoughts raced through my head, screaming for attention as Mr J’s voice faded in the background. Suddenly I broke down. I bawled and wailed. I know I spoke in Swahili and Kikuyu much to the amazement of the good doctor. How he maintained his composure beats me.
Mr J held my hand and took me to another room where I was introduced to my personal Breast Cancer Nurse. I couldn’t believe that just a few hours earlier I had left my home a nurse and here I now was, a patient in need of a nurse. Mr J and Nurse A did their best to comfort a dishevelled and inconsolable me, all alone in the UK with no family and no romantic life to speak of. I cried harder. I missed my family and friends. I wished they were there with me. But I could not risk telling them anything over the phone.
When my abusive and manipulative marriage ended, I had thought that I would never go through worse times. I had even lied to people that “when you hit the bottom, you can only go up”. I wish to correct that and say, if you think it cannot get any worse, it actually can. It did. Right there, in my full view, it got worse.
There followed a series of blood tests and imaging tests and more blood tests. I did not even flinch when the nurse said she would need more blood samples. I would have to wait about a week for the results of the biopsy that would determine what stage the cancer was in and how management would look like.
In contrast with common practice in Kenya, the management of patients in the UK is largely patient-centred. Patients take part in the management of the disease from the initial point of diagnosis. There are no surprises. Doctors do not dictate what treatment will be given. They offer options, complete with alternative routes, and discuss the risks and benefits of action or inaction. You would be a fool to ignore science. Mother dear raised no fool in me.
A week later, it was determined that the cancer was Stage 1. Sigh of relief… because Stage 1 is curable. Results also came back positive for female hormone receptors. This matters because cancer cells behave like padlocks and we must know what type of padlocks they are. For each identifiable receptor, science has the keys or medications needed. Some cancers come back negative for all three types of “receptors”, the so-called Triple Negative Breast Cancers that are notoriously difficult to treat and manage. Sneaky little witches.
On 25 June 2021, I underwent surgery under general anaesthetic to remove the lump at the Western General Hospital. The United Kingdom has since 1988 invested heavily in breast cancer units, making breast cancer care effective and efficient. Waiting times are reduced because breast cancer patients do not have wait in line with patients seeking other services. Since Kenya seems to borrow heavily from the United Kingdom’s ways of doing things, perhaps this is one practice we could import.
Thankfully, the cancer had not spread beyond my milk ducts. But I needed radiotherapy to kill any remaining cancer cells and to reduce the chances of recurrence. All this happened in less than three months. I had to put on my big-girl pants and face my treatment. I did not have the time to mourn my lovely breast.
As I write this at the Lerruat Log Resort atop Kumpa Hill in Kajiado County, I cannot help but look at my breasts again in the mirror. I seem to be doing this a lot lately. Gazing at my breasts. As if I want them to say something to me. A habit that intrudes on my attempts to focus elsewhere. They are clearly asymmetrical; the left one dwarfs the right one. My bra size has also changed.
I am glad that they did not have to remove my breast. I still look forward to starting a family and breastfeeding my babies. I do not know how pregnancy will affect my breasts but I have come to accept that worry and fear are the nub of anxiety. I just am grateful to be alive and still have both breasts. Symmetrical or not, they are my breasts and I love them today more than ever.
Support The Elephant.
The Elephant is helping to build a truly public platform, while producing consistent, quality investigations, opinions and analysis. The Elephant cannot survive and grow without your participation. Now, more than ever, it is vital for The Elephant to reach as many people as possible.
Your support helps protect The Elephant's independence and it means we can continue keeping the democratic space free, open and robust. Every contribution, however big or small, is so valuable for our collective future.
We Just Eat
There is a stereotype that conflates the image of an absurdly full platter with most people’s thoughts about the Luyia community.
A few weeks ago, a friend of mine randomly suggested something to me just after we’d passed a roadside grill on our way to Kawangware Market.
Tukule ulimi. Let’s eat tongue.
I obliged, both of us turning back to the spot where chunks of meat of different shapes and sizes were sizzling on an oily black grill, the tongue among them, sending smoke upwards, dripping juice. . . let me stop there. We ate the tongue and proceeded to the market. There we sat on a bench next to a chipo guy frying potato chips and crisps, his pan tilted at an angle to fit on the jiko. This we wanted a taste of. As we waited to be served, I suddenly became self-conscious.
“Do I eat too much?”
It’s well over a decade since my primary school peers and I walked to a neighbouring village to listen to the District Officer’s address on the occasion of a national holiday. The hot equatorial afternoon would present a challenge to the day’s main task – the D.O’s speech, and his token to students in the division. As we waited for the D.O. An elderly Luyia man stood up to address the crowd, proceeding to say something spiteful about my village. I remember the emotion in his words. It was strange. It felt like he had a problem with that part of the location I was from, or the fact that people from there were present. He said, “I do not like the name Nyang’ori, I do not like the name Nyang’ori because back when we were children the Luos used to refer to people from that side of our location as Jokuo Nyang’ori.”
At that time, I was still a pupil in primary school, in my final year. I had strong loyalties but could not do much to assert my position. So I kept my cool. Then recently, a song sneaked its way into my head and took me back to that time.
There’s a song that Luhya children sang to their mothers while skipping around the homestead in play. While their mothers prepared the fields in anticipation of the coming rains, they would sing:
Mama mbe zimbindi nzie kuminza
Nzie nzie nzie,
The first part of the song is sang to the mother asking for cowpeas to scatter in the field. The second part of the song goes:
Kiravura kitiezo, ngani inzara yakwita
Na nunyori kanyama, ushiezanga nogonga
Here, it seems to be the mother responding to the child saying, if it were not for kitiezo – a salient shrub that grows wild in the field – we would have died of hunger. The second line is a general observation that if one happened to find meat, they would grind on the millstone with joy.
In his book Western Kenya Historical Texts, Gideon S. Were explains that the name Nyang’ori, by which the Terik are known, dates to the severe famine of 1907 that led Teriks from the Nyang’ori area to steal cowpeas from the fields of the Joluo. As a result, the Joluo nicknamed them “stealers of cowpeas”, Nyang’ori.
Were notes that the traditions of the Terik confirm the fact that the name Nyang’ori was a nickname given to them by the Joluo due to the community’s habit of stealing their cowpeas. While still in primary school, my friends would always remind me that our village once went by a Terik name, Matrin. Nyang’ori seems to be a recent addition in the history of my village.
Now history confirms as factual the basis of that old man’s speech from my childhood. It gives space for whatever emotion he must have felt while expressing his feelings about my village – a century-old grudge. And a century might be a long time to still hold resentment over stolen food, but not long enough to completely erase the influence that the customs that defined relations in the time of our ancestors have on our present lives.
There is a stereotype that conflates the image of an absurdly full platter with most people’s thoughts about the Luyia community. For the longest time advertising, and more recently social media platforms, have reinforced this stereotype with performances of Luyias devouring huge amounts of food in one sitting. Without understanding that absurdity is one of the mechanisms that promote visibility on social media, one might easily be led to believe that a Luyia chewing a whole chapati in one mouthful on TikTok actually does that in real life. Or that a teenager decimating a kilogram of ugali on his own in front of a camera is a normal event in their homestead. Any Luyia with experience will tell you how that makes no economic sense in the village.
This is that part where you, the reader, struggle to detach this image from stories you’ve heard your Luyia friends tell about some of their interesting experiences back at home, upcountry.
A good number of Luyias really are guilty of contriving to always have the better share of certain meals. Luyia men in particular, have historically benefited from traditions that denied women the opportunity to fully enjoy chicken, as some parts were only served to the older male members of the household, the most infamous prohibition being that of emondo, the gizzard.
There is no concrete reason why the ban existed except that the emondo was meant for vasakuru, the elders only, as my aunt tells me. My efforts to reach an elder for an explanation about why the emondo was reserved solely for them were met with reticence. An online group that discusses a wide range of issues on the subject of Luyia culture and life—known on YouTube as the Luyia Fun Group—offers an interesting reason why women are prohibited from eating emondo in one of their videos. They claim that the emondo was found (by the elders) to bear a striking resemblance to a certain part of a woman’s body, and therefore rendered women unfit to eat it because of the homosexual imagery suggested. If there is any truth to this claim, and knowing our ancestors for who they were, the ban must have been a metaphor for their stand on a conversation many of them were obviously not ready to have.
Today, this metaphor has clearly been stripped of its latency. The stand it sought to soften remains in the community though, an oxymoron of the idea that queer manifestations of sexuality are imports of the western world to Africa. There’s still great denial of the existence of homosexuality in African communities, and where denial has failed cloak and dagger have been employed. Dissenting arguments usually range from homosexuality being against traditional African values, to it being unchristian, and most recently, a product of our continent’s interaction with Western culture on social media.
In my village, institutions dating back to the time before any contact was made with the Western world expose the contradiction in this dissent. During the time of my initiation into manhood under the Tiriki institution of idumi, manhood, one of the initiates in my rikura, age set, had long been known to have homosexual inclinations but faced no violence based on his nature during the whole period of seclusion. One would expect that such an institution rooted in African tradition would be extremely hostile in its attempts to correct the unmanly aspects of an initiate, in imparting its conception of manhood to a male member of the community.
In the mid-1920s, when the Quakers were establishing their mission station at Kaimosi, Luyia women in the larger Vihiga area were not allowed to eat eggs. This culture prevailed until the intervention of men who had just gained literacy from the mission set up by the Friends Quakers at Kaimosi. Yohana Amugune, who was among the first men to convert to Christianity at the Friends Kaimosi mission, went back to his village in Chavakali to spread the gospel. One of the reforms he sought to which he sought to apply his new knowledge and belief was the eggs issue. In his essay Yohana Amugune and the Maragoli published in the Biographical Essays on Imperialism and Collaboration in Colonial Kenya compiled by B.E Kipkorir, J.M. Mwenesi writes that upon returning from the mission in Kaimosi, Yohana Amugune broke the taboo and made no secret about letting his wife eat eggs, previously the preserve of men.
Christianity seems to have revolutionized food culture in Vihiga by pushing for the full inclusion of women at the dining table. On the other hand, it required them to forget crucial items on their menu, such as ugali (a stiff porridge) made from traditional grains.
Azangu, a historian I met at the National Archives while researching this story, had interesting thoughts about this matter. Azangu grew up around the Kaimosi mission in the ‘80s. The insights he shared with me suggest that the introduction of religion might have had a lot to do with the disappearance of certain foods and the adoption of others. Azangu told me how the Friends Quakers missionaries in Kaimosi grew maize to cater for their food needs, fostering the gradual shift from the traditional staples of sorghum and millet to maize among the new converts. One of the contributing factors to this shift was that maize was a bigger grain that was not as labour-intensive to cultivate and harvest as sorghum and millet. However, the biggest attraction came from the social benefits guaranteed by the shift rather than the economic incentives.
“During that time, the white ugali made from maize flour was associated with Christianity and modernity, this directly translated to higher status. . . The preparation of the brown ugali was pretty difficult, it required a higher level of skill to prepare compared to the white ugali.”
Azangu’s thoughts on Luyia food culture confirmed to me the idea that, perhaps what is viewed, and has been viewed for long time as an obsession with food, is rather a social structure that has embedded food security within its order – the order being efficient enough to sustain its people and itself, but also enough to be viewed as exploitative by outsiders who might not fully understand the culture.
In response to a question I had posed about whether Luyias really eat as much as the stereotypes suggest, Azangu said, “We do not eat that much, we just cook enough. And if you find yourself finishing all the food you’ve cooked, you are still not content.”
I find his remarks very comical but still legitimate. Food security has always been embedded in the social structure of the Luyia community. We have always had a culture of sharing food that bestows a feast-like quality on every meal prepared – we are not afraid of having guests join us at meals, we do not want to have to be awkward with those who find us mid-meal, and so we prepare even for those who are not present.
So, rather than being a love for food, for Luyias, it is a love of life; how could one separate the concept of life from food? That’s why Luyia funerals might be mistaken for feasts because they are actually a celebration of life. When the Keima drum is beaten, preceding the funeral procession, prompting the villagers to find their way to the home of the bereaved, it also asks them to fill their baskets with produce and carry them to the feast they are heading to. Most strangers cringe at the sight of villagers packed inside the homestead of the bereaved whenever a villager dies, being served mountains of ugali in plates on the verge of breaking from the weight of their contents. But a wise Luyia with an idea of what a functional Luyia society looks like or once looked like, appreciates the role of the dead to the living. They might validly argue that the departed is playing their last role on earth, giving life to not just one person, but to the whole community.
The departed deserve an opportunity to leave with a bang!
The song in my head is a song many Luyia children know. It is a song contemplating scarcity while it drips of joy. A song whose significance might be considered by many as just an historical record of emotion during a time of scarcity – a grave omission of an important message that the song seeks to relay to all children and adults with access to it: Prepare for better days, for worse times have existed, and always remember to be joyful.
Apart from the disappearance of the grinding stone and the loss of prestige of the white ugali, a lot has changed over the past century in Luyia food culture. From the emondo coming to resemble only itself – part of a chicken – to be eaten by women, to eggs becoming a normal thing for women to eat. The only constant has been rikuvi, the vegetable that grows when cowpea seeds are scattered in the fields. The cowpea seeds that the Nyang’ori people went down to Nyanza to steal more than a century ago, seeds that earned them their name.
Perhaps, the strange emotion that made the old man declare his dislike of the name Nyang’ori was due to his inability to reckon with the fact that time had erased its negative connotations but had left the name and its history intact.
This really is strange.
On our way back from Kawangware market, my friend and I happened to pass by the same spot where we had shared the tongue and overheard a woman asking those in her company, Tukule roho? Shall we eat heart?
We exchanged glances, smiled, our tacit agreement not after all exclusive to us, nor our secret cravings.
Everyone loves to eat, and to share food.
Luyias are no exception. We just eat.
The Hidden Lives of the Trees of Amsterdam
Contemplating nature and falling back on the wisdom of trees to guide me through the unknown.
There was genuine cause for angst in the early days of the COVID lockdowns as the pandemic spread unabated throughout Europe. I was a new arrival in the Netherlands, marooned at home, working as a remote curator-at-large for the online publication The Elephant. While I appeared stoic to my team based in Nairobi, I could not shake off the feelings of uncertainty. I had a child who had just learned how to walk and my wife had started a new and demanding job.
Amsterdam was ghostly. Trepidation beset the city and it seemed as though people had gone into hibernation. On most days, in between Zoom calls to Nairobi, I would stare out of my home office window at a large weeping willow tree that stood on the edge of a canal, feeling a loss of control.
One morning, I noticed a flock of green ring-necked parakeets perched on the willow tree. I had not seen those birds since the days of my childhood in the Kenyan countryside and their appearance in a foreign country was serendipitous. In times of crisis one is attuned to signs from nature and in those familiar birds and in the willow tree, I found a sense of hope and belonging.
A friend from Kenya who arrived in Amsterdam around the same period also talked about the silent assurance he had discovered in trees. He worked the night shift. For months during those cold days, while his wife and children were away, sitting alone in the house staving off depression, he drew strange comfort from contemplating the sturdy nature of the single tree that grew in his backyard.
When you come from Kenya, winters are survived, chalked down and added to the résumé.
Having grown up under the tutelage of a father who was an avid forester, it was natural that I should fall back on the wisdom of trees to guide me through the unknown. But this awareness would unfold gradually as the trees of Amsterdam revealed their hidden lives.
There is a popular museum in the centre of Amsterdam, on Prinsengracht Street, dedicated to Anne Frank’s life, her famous diary and the secret annex. Anne Frank was born in Frankfurt, Germany, and her Jewish family had fled persecution for the relative safety of Amsterdam. When the Germans invaded and occupied the Netherlands in 1940 and began deporting Jews to death camps, Anne Frank went into hiding. During her two years in hiding, Anne Frank turned to writing to pass time, journaling not just the daily events but also her thoughts and feelings.
Anne Frank’s father Otto survived the war, found his daughter’s diary and it was eventually published in 1947 under the title The Secret Annex.
There is a passage in the diary where Anne writes about a tree, a white horse chestnut that she used to stare at from her window in the attic. That huge tree standing in the courtyard garden, 170 years old, was a beacon of freedom, longing and hope.
Tragically, Anne and her sister Margot were arrested and deported to the Auschwitz concentration camp where they were separated from their parents. The sisters were taken to the Bergen-Belsen concentration camp where, under the unhygienic conditions, they both succumbed to typhus and died in February of 1945.
When I went off in search of the famous tree that Anne Frank wrote about, I found that it had fallen 10 years earlier in 2010 and all that remained was a stump. I found a connection with the story of the horse chestnut tree in Anne’s diary because trees were one of the first signposts that I used to navigate the newness of this city.
There is another tree that is located in Bijlmermeer in the south-east of Amsterdam that is not as famous as Anne Frank’s tree. Its story is much more recent. In 1992, an El Al cargo aircraft en route to Israel lost its engines while trying to circle back to Schiphol airport for an emergency landing. It crashed into Groeneveen and Klein-Kruitberg, two multi-storied apartment buildings, killing 43 people, most caught unawares in their homes innocently winding down the day.
There were speculations that the death toll may have been higher as many undocumented and unregistered people were not accounted for following the accident. On the site, facing a new apartment block, sits the tree that saw everything, a living witness to the Bijlmerramp air disaster.
Amsterdam is a green city and trees are everywhere. The canals are lined with old elms and practically all city roads and neighbourhoods are fronted by straight lines of trees, usually of one species. The tenement buildings may appear to have the same aesthetic similarity of the predominantly red or grey brick walls. But in the courtyards, hidden from street view, are lush green gardens and trees.
I was soon able to guess the age of a neighbourhood by looking at the size of the trees growing in it. I also started to notice that most of the trees in Amsterdam grow straight. Crooked trees are a rare sight.
Many mightn’t be bothered by this little detail but I began to inquire about the stories behind the trees of Amsterdam. A tree is crooked because it adapts to nature and the forces it encounters, but the breadth of uniformity I encountered in the Dutch landscape was an indication that nature had been colonised.
The Amsterdamse Bos (The Amsterdam Forest) that is located in the southwest of Amsterdam, sitting on the border between Amsterdam and the Amstelveen municipality, is a prime example of this. It is an imposing city park, of a scale and order that I find intriguing. Measuring 1000 acres, it is about the size of Nairobi’s Karura Forest, with one unique distinction; all the trees were planted by hand and its all features, including its artificial lakes and solitary hill, are products of grand design. There is also within it a naturist area where nude sunbathing is allowed.
Amsterdamse Bos began as a government work relief effort to deal with the economic crisis of the 1930s. Today it is a functional park, a natural landscape designed for recreation and relaxation that draws in 4 million visitors every year.
I remarked to a Dutch friend over a cup of coffee that the Amsterdamse Bos felt like a big green arcade. To which he shrugged and said, ‘’Poof! You think this orderly, you should go to Switzerland. They are worse than us.’’
Then, as if in admission that he was accustomed to unnaturally neat nature, he recalled a road trip he had taken in Canada a few years earlier. As they drove through the spectacular Boreal forests, both he and his wife agreed that the forests were magnificent. . . if only the Canadians would clean up the forest floor and keep it tidy.
Another Dutch friend took me on a tour of the Vondelpark in Amsterdam, to a spot over a white wooden bridge from where I had a direct view of a tall fountain in the middle of a serene pond with a leafy tree line as its backdrop, spraying water high into the air.
“You see that picture. . . it was designed to be a paradise ideal and nature has been conquered for human splendour with man as the sole animal in it.”
Indeed, it was getting harder to distinguish between what was natural and what was artificial. The Netherlands is a waterproofed country and it is easy to forget that most of the country lies below sea level. It is a country that conquered the waters after a long struggle against nature and 17 per cent of the country’s landmass is reclaimed from the sea.
This is why “God created the earth but the Dutch made the Netherlands’’ is a well turned phrase.
In an effort to know my neighbourhood and meet the locals, I joined the Knotgroep of Uithoorn, green volunteer effort that operates in a municipality on the outskirts of Amsterdam. The group of volunteers are all Dutch pensioners with an average age of 60, and there are as many men as there are women. As I park my bicycle, I receive a series of hoi, Dutch for hi, pronounced with much emphasis.
After a briefing by the group leader, the pitchforks and rakes are distributed and we walk to a privately-owned polder that is used as a paddock on the border of a small lake called Zijdelmeer. Mown grass is strewn all over the paddock. The ground underneath the soaked grass is wet and I can smell manure. Our task is to pile the cut grass into haystacks. The work takes effort and jackets are soon thrown off. Why do they subject these senior citizens to such strenuous work?
I ask why this work is not done by machine given that the Dutch have a machine solution for every task to be done in nature. I am informed that the stacks of grass we are preparing are nesting places where small harmless snakes can hatch and thrive. It also leaves room on the ground for wild cranberries to grow. Such delicate work, necessary to balance the ecosystem, can only be done by hand.
The group continues to work silently and meticulously, and then suddenly, excited voices come from one end. We gather around to find out the cause of all the excitement.
Someone has found a frog.
I am puzzled so I turn to my group leader, a tall Dutch man called Bill.
“Why are we getting excited about finding an amphibian in nature?”
‘’We don’t have frogs here anymore,’’ and he recounts the story of his youth and of a time when nights were filled with a cacophony of croaking. But since the arrival of the red swamp crayfish, an invasive species that feeds on aquatic plant and animal life, the nights have gone silent.
It then occurs to me that for all the canals that surround the neighbourhoods, I never hear any frogs croaking at night.
‘’We are just trying to bring back nature.”
I want to tell Bill about the irony of Nairobi, the former Green City in the Sun that has declared war on trees in an effort to modernise its infrastructure while Amsterdam seeks to return to its natural past and where trees are valued as sites of memory. But I don’t voice my thoughts.
Breast Cancer: The Weight of Waiting
My battle with breast cancer has taught me two things. How to be afraid and how to wait.
My birthday is flamboyantly controversial. My parents are sure they brought me into the world on the 7th of June thirty years ago but the government of Kenya decided that I was born six days earlier, on June the 1st, and my official documents say so. That is why my fellow nurses at the Royal Infirmary of Edinburgh threw a surprise birthday party for me on the 1st. Just after the breast cancer diagnosis. But they do not know about the diagnosis. They need to wait.
It is 11h03 British Summertime (13h03 EAT). I am not thinking how wonderful it is that I was born. I am worried that I might die. I am in the waiting bay at the Edinburgh Breast Unit of the Western General Hospital. Last week I was told I had breast cancer, but nobody could confirm the stage and grade yet. I was asked to wait for the results of the fine needle aspiration (FNA) biopsy.
An FNA happens when doctors want to get slivers of tissue from an organ or a mass to find out what type of cells the organ has. Or, simply put, to study that organ in finer detail. When I came here last week, they sedated my left breast then asked me to wait as the anaesthetic knocked my boob out. Then the specialized therapist took out bits and pieces of the swelling inside my breast. A clinical support worker applied pressure on my breast to stop the bleeding. Then I was told to wait.
I seem to be doing a lot of that lately, waiting. I am waiting in this bay for my 11h15 appointment with Mr J., my breast cancer surgeon. I arrived fifteen minutes ago. I forgot my appointment card at home. The medical receptionists do not seem to mind. This is a cancer unit. There are more worrying things than forgotten appointment cards.
There are a few of us here. I can count ten women and two men. Both men brought their spouses. One is in a purple and white checked shirt, and he seems uninterested in his wife’s conversation. The checked shirt has caught my attention. It is a pattern favoured by men from central Kenya. All he needs is the signature baseball cap that Kikuyu men wear and he could be a Kamau or Njoroge. He is playing some game on his iPad as he nods absent-mindedly to whatever his wife is saying.
Most of us are on our gadgets. There is an unspoken sense of apprehension. We choose to speak to our phones and not each other. We want to cling to a sense of normalcy. For the current generation, normal comes in a small box with a keypad, a camera and attention deficit. We have no idea how to speak to real human beings.
People keep streaming in, more women than men. Breast cancer is more common in women than in men. I see it here. More women come in. The seats are now all occupied, and I give mine up for an elderly woman who has just come in, huffing and puffing on her walking frame. Dear God, I think to myself, just how common is breast cancer here in Edinburgh?
There are women from all walks of life here. I see a Chinese woman, or Korean, I can never tell the difference. Another is Filipino; I know because she has just answered her phone in Tagalog, the national language of the Philippines. Several of the women are Caucasian. I am the only black girl in the waiting area.
Where are the black people in this waiting bay? Did they come in yesterday? Perhaps they will come tomorrow? Why am I the only African in this waiting area? Probably Mr J. will tell me that he has made a very big mistake and that there is no cancer in my left breast. It could be that I should not be here. In fact, since I began this cancer journey not once have I met an African.
A bespectacled doctor has called in a Mrs Frame. Mrs. Frame is the woman I gave my seat to. She is using a tripod frame to walk. I see a pun here and I think it is funny. But this is a cancer department. We don’t laugh here. But I feel a smile take form on my lips. Thankfully, the face mask I am wearing hides my amusement.
There is a six-foot-tall woman near the exit of the waiting bay. The waiting bay has an entry and an exit. We come in through the entry where the medical receptionist is perched on her chair like a patient mother hen and we leave the bay through the exit when we are called in to see the doctor.
There is a water dispenser near the exit. The tall woman looks young. Thirty-something young-ish. Her presence gives me hope. That I am not the only young woman here. She moves restlessly on her lanky, sun-kissed legs. She is wearing a pair of booty shorts because the summer sun is here with us. She keeps tossing her mass of bronze of hair as she scrolls through her phone like someone looking for social media notifications.
It is like we are all keeping her from more important things in her extremely busy life. She looks like she will make a run for it. I cannot blame her. I too would run. If I could run fast enough to escape a breast cancer diagnosis, I would. She is pacing. A sure sign of anxiety. I am tempted to either join her or stop her. I too would rather be anywhere else but here. I need to be with my dialysis patients. I want to continue being a nurse, not this patient waiting in this lounge.
Two clinical support workers enter the bay, sweeping it with their roving eyes as if looking for someone or something. Then they leave. I do not like this. I wish they would speak. Which reminds me of my own practice as a nurse. How often I go to the waiting lounge at the dialysis centre where I work, use my eyes to scan the area then leave quietly. I make a mental note to change that. I will be engaging the patients and the waiting relatives. I will even be telling them that I am just looking for someone, or something. The silent eye-scan is unsettling.
As if on a surgically precise cue, one of them pops back in and asks if the room is too hot. A middle-aged woman in an unremarkable pair of jeans says the room is hot. The clinical support worker promises to turn the thermostat a degree or two lower. I do not care about the temperature. I care that she has spoken to us. That we are not just waiting slots but real human beings with varying repertoires of cancerous anxieties.
For a moment I feel sleepy. I have been writing on my smartphone to keep myself occupied. I am exhausted. I have not slept well since they gave me the diagnosis a week ago. My nights have been screaming terror and yet, in the noise, God has been roaring. He gave me pen and paper. I have been using them to bleed out my fears. But now I need my bed. It is way past my appointment time, which is not surprising given how thorough these specialists are.
“Miss Meina,” a familiar voice pierces through the silence. I quickly put my phone in my purse and stand up. It is Mr. J, my breast surgeon. He cannot pronounce my surname properly, and he calls me “Meina” like many white people do. I do not mind. As long as they spell it correctly.
After profuse apologies for keeping me waiting, Mr J. starts breaking things down.
“We are lucky that the Stage is confirmed to be 1 and the tumour is in grade. . .” he starts. Nurse A, the breast cancer nurse assigned to me, joins us in the consulting room.
“We will need to run more tests to determine the best form of surgery to remove the tumour. Have you ever heard of gene mutation?”
Everyone has BReast Cancer (BRCA) genes. There are two types, BRCA 1 and BRCA2. These genes are protective in that they stop the cells of the breast from growing out of control. Sometimes we inherit faulty ones. Or something in our environment causes them to change and mutate. This places us at risk of developing breast cancer. Even then, only 5 per cent of all diagnosed breast cancer cases are due to a faulty gene.
“If we find faulty genes Catherine, we might have to start thinking about double mastectomy with breast reconstruction.” Mr J. says matter-of-factly. Sweet King David and the choir of heaven! Did he just say total removal of both breasts at thirty? What exactly are you telling me? What about the children I hope to bear someday? What about my dreams of motherhood? Could this disease have come at a worse time? An unwanted boob job? I am not ready for this conversation.
I stand up and head for the sink in the room. I am torn between vomiting and screaming. I settle for crying. The tears, hot, bitter, angry tears roll down my face. I don’t bother to wipe them away.
Mr J. rubs my back as Nurse A hands me tissues to blow my nose. More blood samples are taken for these complicated tests. I cry some more. Now I have to wait for the results of these tests. The waiting never ends. The fear of the unknown creeps up to me like a menacing nightclub bouncer.
My battle with breast cancer has taught me two things. How to be afraid and how to wait. I do not lock out my fears. I invite them in, make them a cuppa tea and then use my fork to poke them in the eyes. I no longer wait while doing nothing. Doing nothing is the chief ingredient in the meal of overthinking. I wait while writing and praying. I wait while reading and researching. I wait, ultimately, while clinging onto the hope that the God of the mountain is still God in the valley. Afraid and tired, I wait.
Politics2 weeks ago
Vitu Kwa Ground ni Different! Anticipations, not Policy, Driving LAPSSET
Op-Eds2 weeks ago
Fighting the Good Fight: Announcing the Progressive International Observatory
Reflections1 week ago
The Hidden Lives of the Trees of Amsterdam
Culture1 week ago
The Politics of Street Names
Op-Eds1 week ago
I Am Samuel
Culture1 week ago
The Case for Reparations and Revisiting Colonial Atrocities
Reflections1 week ago
Breast Cancer: The Weight of Waiting
Politics1 week ago
Born Cattle Bandits? Not Us