Millennials II: Speaking up in the Silences9 min read.
We are still trying to understand who we are and how our society got here, and in doing so we reject the mantra of ‘accept and move on’ or ‘don’t rock the boat’ like many of our parents embodied. There will be a culture clash, but maybe it is necessary, so we can redefine ourselves, redefine family, and redefine Kenya.
“Kenya’s official languages are English, Kiswahili, and Silence.” ~ Yvonne Owuor
It is always interesting to see the confusion in our parents and older generations with Millennials. It is a clash of cultural values. They may have raised us, but we occupy a place in a global and information culture that they never imagined possible. I see them struggling to understand.
I was born in the 1980s, when the attempted coup was still fresh in people’s minds, and the screws of repression were increasingly tightening. I was too young to know about the agitation for multi-party elections and only later read about it from my grandfather’s collection of The Weekly Review magazine, one of the few publications at the time that was consistently speaking truth to power.
In the 1990s came the liberalisation of the airwaves, and my generation was exposed to much more music, television programmes and movies than our parents were aware of. I remember for the longest time wanting an FM radio so I could listen to Capital FM and later Kiss FM. My evenings from school were often spent shifting between doing homework, and dancing to the music on Rastrut, Jam-a-delic and other weekly music shows. This was a time when African American culture had a kind of golden age on TV. The shows we watched were everything from Sesame Street to In Living Color, The Fresh Prince of Bel-Air, Family Matters, Renegade, Sarafina, The Bold and Beautiful and so many more. Today, if someone my age who grew up in the urban spaces that I did starts a discussion on our childhood, we have many common memories and attachments through these experiences, even though we might have disparate upbringings in other ways. Even from many miles away, we were part of that collective cultural moment, and social media now unites us with our peers across the world, over both the mundane and serious. While we too have many points of differences there is a unique connection to each other from the global and local exposure we have.
It was a time when Kenyan art, and especially music, was starting to find its identity. Hip-hop, comedy and poetry were on the forefront of this shift. A strong emphasis of the art being created at the time was questioning of the status quo, extra judicial killings, and the dysfunction of the political state. It created a healthy skepticism in authority and authority figures. Some of my earliest ideas and understanding of another Kenyan narrative from the streets and the grassroots came from hip hop artists like Ukoo Flani, Kalamashaka, Mashifta and others. The comedy trio Reddykyulas was hugely influential too, allowing us to see ourselves, and critique who we had become as a people, without fear.
On the other hand, our parents grew up in a fractured culture straddling the traditional cultures and the colonial ethnocentrism that despised and looked down on traditional culture. Kenya is 55 years old and still grappling with what colonialists did to us, whether we realise it or not. The colonisers subscribed to notion of Social Darwinism that believed that the closer a culture was to European (and in our case British) culture, the more advanced it was. Given that African culture was completely different, we were seen as uncivilised, despite the fact that we had lived and thrived for centuries before.
Colonialism systematically destroyed our families and destabilised all aspects of society that had functioned until then. Colonial tax obligations pushed people into the cash economy, creating a migrant labour market, and thus separating families. They confiscated land, leading to a large, landless class of laborers who traveled from place to place in search of work. Breaking communities up like this was certainly an easier and more secure way of obtaining money for taxes and for selling goods to them. This economic subjugation still continues in various forms today, with insecure land tenure systems, and families still vulnerable to eviction, land grabbing, and cartels.
The colonisers employed violence against grown men and women if they were not only obedient but also sufficiently deferential. Alyse Simpson recalled whites in1920’s Kenya: “They boxed their own and their neighbours’ servants’ ears if they failed to be servile enough, which in their childlike simplicity they sometimes forgot to be.” That notion of Africans having ‘childlike simplicity’ was not a benign one. It means that we were assumed to be incompetent in our own governance. It upended the structure of society where adults were adults, and were worthy of making decisions. It is highly likely that the violence visited on them resulted in powerless frustration that was then transferred onto the next generation.
Despite being supposedly ‘independent’ since 1963, we never really sat to examine what had happened to our society and technically just exchanged one ruler for another. You see it in the way we casually infantilise grown men and women by assuming the state will make better decisions than they ever could for themselves. We do it too in our families to our poorer relatives or those who dare deviate from the norm.
I sense that our parents were brought up to obey unquestioningly, a result of the kind of violence and censure that defiance would bring upon them. My generation however learned to ask questions, perhaps as a result of the global culture we were exposed to, and so we do. Even though we may not have been as inquisitive in the open as we were in private – we are still our parents’ children, after all, and we were taught to behave in public – the Internet and social media have recreated a quasi-private space that allowed us to continue to question the status quo.
Traditionally Africans had structures for bringing up children and teaching them how to handle themselves as adults. We would learn to cook, herd animals, care for children, find herbs that could cure diseases, prepare for seasons, and so on. This all happened within a certain social context, where an older person would teach a younger one. With colonisation, and especially the disrupted social ties that urbanisation brought, these teaching moments fell away. Those lucky enough to live around aunts, uncles, cousins and grandparents learned a lot from the community. Those who didn’t have these structures simply ended up learning from older siblings who may not have always had the right information. More than that we learned from each other, from our neighbours, our classmates and other peers around us.
Teaching requires a voice. But many of our parents had lost their voice and hope, perhaps without knowing. Maybe it was the difficult economic conditions, the secret police and the threat of torture chambers that hung ominously over their heads. Confronting their own situations and the loss of their dreams at the hands of a powerful and corrupt government that killed many who stood up to it must have been an impossible task then. With time I believe the silence grew to encompass even more of their lives and who they were. I wonder if we will ever truly understand what they went through. Facing up to this anguish and loss was avoided by just forging ahead in some ways and at other times acting out in the private family arenas. It has become the ‘norm’ of Kenyan social conditioning for people to turn social media as a space for confessions and on FM station talk shows. Those who could leave Kenya emigrated to Western capitals, those who chose to stay and fight became pariahs, and the rest kept their head down to avoid trouble in a sense of learned helplessness. For those who accepted the status quo it meant a constant adjusting to the changes, a constant policing of their own behaviour and of those they loved to save them from the state sanctions of the day.
Many of our Kenyan notions of respectability can be traced to British colonialism. As long as the orange is waxed, shiny and orange on the outside it does not matter if the inside is rotten and full of worms. In Kenya a person’s importance is often based on what they do, which family they come from or which influential person they are close to, who their spouse is and finally how wealthy or famous they are. It often does not matter what vileness they have been part of, the wealth and fame become like a sanctifying agent. No wonder folks say pesa ni sabuni (Money is like soap).
The breakdown of traditional African society and the public accountability that came with it was replaced with a desire to be respected according to colonial values. For many of our parents a sense of worth was built on how others saw them and spoke of them. Their children were often extensions of this. Many times our own personal choices, even as adults, were not seen in the light of the people we are but as active antagonistic choices against them and the reputations they hold so dearly. Our personhood is not known to them no matter how hard we try to show them.
This is a journey I see many of my peers going through. We are still trying to understand who we are and how our society got here, and in doing so we reject the mantra of ‘accept and move on’ or ‘don’t rock the boat’ like many of our parents embodied. There will be a generational clash, but maybe it is necessary, so we can redefine ourselves, redefine family, and redefine Kenya.
When many of my peers sit and talk to recall our childhood very few of us had good childhoods or teenage years. The truth that our parents did not want to face was that one can only keep up appearances for so long – it always happened that glass of respectability shattered at one point, destroying everything in its vicinity. It would be in the discovery of infidelity in one or both parents, or that there were other entire families who called your father dad. It was in finding out about a secret child your mother had before but kept hidden. It was financial ruin, domestic abuse, rumours of witchcraft in families, evil in-laws, or unexplained absences of parents for years, all hidden under a veneer of respectability.
Discovering any of these for a child or a teenager is traumatic; it’s even worse so if there is no reliable adult to help them talk through these things and make sense of them. But it’s impossible to talk about anything when respectability is the constant demand. What will people think is the first, and the most powerful reprimand. Many times we were told that voicing these concerns is tantamount to publicly humiliating your family. Very often the child/teenager/young adult attempting to talk will be castigated even more than the adult who caused the incident or trauma. Instead of protecting our children from the trauma of past actions, we force them to pretend all is well, never bothering about their emotional and psychological state. All these affect the adult this child grows up to become. Many times the alcoholism, drug and sex addictions are ways of dealing with internal pain, not to mention depression, anxiety and panic attacks and other mental health illnesses.
Growing up without my primary parent for 20 years nearly destroyed me. I went through depression, abandonment, homelessness and a myriad of other situations before I finally was able to find my way out. My larger extended family still does not understand why I am this way because I went to “good schools”. But a boarding school does not make child or create a home for them. Neither is it a place to show you that you are loved and worthy, that’s what a family is for. There are those who definitely did try, but the truth is, parenting is a constant effort and not a peek-a-boo performance where one appears and disappears at will. The unfortunate bit is as a society we have been unable to diagnose, discuss and fix the political and economic issues that create these conditionings. We often don’t see the larger governance issues causing them. Why did so many of our fathers have secret families? Why were we constantly battling financial ruin? Why the silence, why the abuse, why the trauma? What was going on in Kenya to make our lives so painful?
The person I credit most for helping me find my way out and holding my hand and parenting is an aunt who I only got to know well after high school. She truly listened to me and asked me questions, offered advice and even when I didn’t heed it she would still be there for me. Her acceptance was total. That was what made the difference and helped set me off on a long journey of self-searching, healing and forging a new path for myself. It has not been easy but it has led me to a path of peace and a better life than I could have imagined for myself.
I see my peers talking about their trauma, depression and discontent both anonymously and publicly, on Facebook groups and Twitter, finding in each other kindred souls to encourage and advice. I see an increased acceptance of therapy and pychological counseling. The ability to be vulnerable or see someone you admire be vulnerable is what gives us the courage to keep going. The culture of silence is slowly being dealt with in many spaces. Still, there are many who are unable to process things, and drown in various addictions like alcoholism and drugs. They need to understand that what we are facing is not a result of individual failure but as a result of a collective failing to deal with our problems in a holistic way, which will continue to claim our people in different ways. Others who haven’t faced the same trauma and pressure do not easily understand the weight of the burden Millennials carry. The only way we move forward is if we start being honest about what is going on with us.
My peers are incredibly resilient in difficult situations. They are also incredibly creative, hardworking and daring. Not a week goes by when I don’t see someone trying to do something amazing. We are our own people. We dare to dream and we dare to live our dreams and over ‘respectable’ professions such as law, engineering and others. We forge ahead, fuelled by a heady mix of invincibility, fear, daring, anxiety and hope. We own our decisions the good, the bad and the sometimes stupid. We realise you can live an entire life trying to please people and still fail spectacularly.
What has failed us are the systems, society, and the continual bashing because we refuse to fall in line. Our parents’ formula of silence and moving on doesn’t work in our world at all. Just being educated doesn’t guarantee you a job. Having a job doesn’t mean you can afford to be sick. Being an entrepreneur isn’t always the path to a comfortable life. Being on a salary doesn’t always mean you can afford a mortgage. Being wealthy doesn’t mean you are protected.
We will continue asking questions, we will continue pushing the dial, we will continue creating, we will continue until we find our personal and collective freedom.
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Women at Sea: Testimonies of Survivors Fleeing Across the Central Mediterranean
Anyone crossing the sea to escape a dangerous situation or to find a better life is in a vulnerable position, but women face the additional burdens of gender discrimination and, all too often, gender-based violence, along their routes. Women represent only a small proportion – around five per cent – of those who make the dangerous journey from Libya to Italy.
On board the Geo Barents, female survivors regularly disclose practices such as forced marriage or genital mutilation (affecting either themselves or their daughters) as being among the reasons they were forced to leave their homes. Women also face specific risks during their journeys – MSF medical teams report that women are proportionally more likely to suffer fuel burns during the Mediterranean crossing, as they tend to be placed in the middle of the boat where it is thought to be safest. . Many women rescued also report having experienced various forms of violence, including psychological and sexual violence and forced prostitution.
“The minute I was alone, they would have raped me.” Adanya, 34 years old, from Cameroon.
Among these women is Decrichelle, who fled a forced marriage to a violent husband with her baby. They left their home country of Nigeria and went via Niger to Algeria. When they arrived in the desert, Decrichelle’s daughter fell ill and she could not do anything to treat her because she had no access to care or medicine. The young girl died, and Decrichelle had to leave her behind before continuing the journey to Algeria: “an immense and inconsolable sadness” for her.
Decrichelle attempted to cross the sea once but was arrested and sent to prison, where she was released immediately, only to be taken by taxi to a brothel. Some Cameroonian friends helped her escape. For six months, she lived in the campos (the abandoned buildings or large outdoor spaces near the sea where traffickers gather migrants) before scraping together the money to pay her way for another crossing. “I want to be in a place where I can live like a normal person of my age. I want to be able to sleep at night,” she says. “I wanted to be here with my child. It hurts me to think that I am safe, and I left her in the desert.”
Beyond the difficulties women face on migration routes and in Libya, MSF teams on board the Geo Barents often witness the strong bonds that develop between survivors on the women’s deck. The women come together to support one another with daily tasks and childcare.
“In Libya, I was sleeping under trucks and buses as I did not have any money.” Afia, 24 years old, from Ghana.
“I want to tell women: it is not your fault. You are exactly the same person as you were before. You are even stronger,” says Lucia, deputy project coordinator aboard the Geo Barents, who has herself experienced rape. “I think it has been really moving to see these women, who actually escaped what I experienced for an hour of my life, and in their struggle, their strength and their hope, [they do not stop] this fight,” she adds.
Meanwhile, when male survivors are asked about the people they left behind or the reasons for their journey, a woman is always mentioned in their stories. Ahmed, 28 years old, was born in Sudan to Eritrean parents who moved to Sudan to escape the war. Having lived all his life as a refugee, Ahmed never felt that he belonged in Sudan. He wished to leave, but as an undocumented person, unable to return to Eritrea for fear of military conscription and an oppressive dictatorial regime, he decided to travel to Libya and cross the Mediterranean Sea to Europe.
Ahmed’s mother was the only one who stood by him when he decided to convert from Christianity to Islam, despite harassment from his other family members. “[Converting to Islam] affected me, affected my friendships… for sure [I faced issues because of that]. At first, from the family… in the beginning, I was secretive… until my family knew; then the harassment started. But my mother accepted me. She told me, ‘Whatever makes you comfortable, do it.’” Ahmed says his mother is one of the reason she was able to make the journey from Sudan through Egypt and into Libya. “She has a really big role in my life. She was continuously supportive and motivating me, wishing me the best. She is my inspiration… I hope to meet her again.”
“I know if I tell my mother I am in Libya, she will be crying every day.” Ibrahim, 28 years old, from Nigeria.
Nejma, cultural mediator on board the Geo Barents, explains her bond with survivors like Decrichelle and Ahmed: “I am African and I am Middle Eastern. I am a mother. I am a woman. There are so many things that link us together. Maybe also the fact that I had to flee. That is a big part of it. I think it helps me understand where people are at the moment we find them; it is an understanding that books could never teach me.”
As a refugee herself, Nejma shares what helped her to move forward in the places she fled to. “[Survivors need to] keep the strength… once they disembark in Europe, it is not the end of the journey,” she says. “It is a different challenge: to not let go of who they are, to never forget who they are, where they are from. To be very proud of their origins. Because you will not know where to go if you do not know where you came from. And I want my brothers and sisters from Africa and the Middle East, or anywhere, to remember who they are. It will make it easier to move forward.”
These stories of the women on board the Geo Barents were collected during rotations of the ship at sea. The portraits and testimonies were captured by two female photographers, with a view to amplify women’s voices, while respecting cultural sensitivities:
Mahka Eslami is an Iranian photographer, who was born in Paris and lived there until the age of seven before her parents returned to Tehran. While studying engineering in Iran, she worked as a journalist for the Chelcheragh. She returned to France where she finished her engineering studies before branching out into documentary photography and transmedia writing to become an independent photographer. Her work has been published by Le Monde, Libération, Society, Néon and Les Inrockuptibles.
Nyancho NwaNri is a lens-based artist and documentarian from Lagos, Nigeria, whose work revolves around African history, culture and spiritual traditions, as well as social and environmental issues. Her documentary works have appeared in numerous publications including The New York Times, The Guardian, Aljazeera, Reuters, Quartz andGeographical Magazine.
MSF has been running search and rescue activities in the central Mediterranean since 2015, working on eight different search and rescue vessels, alone or in partnership with other NGOs. Since 2015, MSF teams have provided lifesaving assistance to more than 85,000 people in distress at sea. MSF relaunched search and rescue activities in the central Mediterranean in May 2021, chartering its own ship, the Geo Barents, to rescue people in distress, to provide emergency medical care to rescued people, and to amplify the voices of survivors of the world’s deadliest sea crossing. Since May 2021, the MSF team on board the Geo Barents has rescued 6,194 people, recovered the bodies of 11 people and assisted in the delivery of one baby.
This story was first published by Médecins Sans Frontières/Doctors without Borders (MSF).
Nairobi, Nairobae, Nairoberry
Cacophonous, labyrinthine, gluttonous, angry, envious, charming, paradoxical, mysterious, confusing, alluring.
Nairobi. A cacophony of matatu hoots and booming bongs from church bells. All in inexplicable harmony. Like a Beethoven piece. A muezzin’s melody moves the ummah from a minaret here, a bus conductor — shouting from the most pimped out mathree — moves umati there. A hawker here. An ambulance there. But there’s also a silent monotone. The sound of hope dying. Of someone stealing two billion every day, of the clock going tick-tock from your 9 to 5. There’s that saying: if a tree falls in a forest and no one is around to hear it, does it make a sound? But what if it’s in the middle of Waiyaki Way? Just because someone thinks giving us an expressway will absolve him of war crimes. While in reality, all it does is leave all the marabou storks homeless.
Nairobi. A labyrinth of lipstick-stained shot glasses and semi-filled ashtrays. Where a party starts regardless of where the limbs of the clock point. And only ends when everyone is browned out and on the brink of calling the one that got away. Nairobi is looking for coins during traffic because you want to help the beggar, who is patient enough to receive the donation before snatching your phone. It is being stagnant in that same traffic for long enough to buy crisps made with transformer oil and served in compact disk wrapping. And like clockwork, you put the window back up because Nairobbery isn’t just a play on words. But the ones that hurt the most are the conmen, because nigga I trusted you!
Nairobi. Where gluttony is second nature. A kaleidoscope of too much gold tequila and too many smokie pasuas. Of good pasta and wine in overpriced restaurants. Of ramen noodles and pre-cooked meat. Where nothing is ever enough. We drink and eat to our fill because life sucks. Why wouldn’t it? Our last president’s advisor was the bottom of a Jameson bottle and our current one’s advisor is Jesus. The spirit guides the nation either way, I guess. But still, Nairobi tastes like chances and do-overs. It tastes like anxieties and aspirations and I know it doesn’t feel like it but today you omoka na 3-piecer then one day you omoka, for real.
Nairobi. Reeks of piss and thrifted clothes. Fresh bakeries and Subway. Old currency and that one cologne every man in their early 20s wears. Smells like fighting your titans and sending a million job applications. Nairobi. Where you can go weeks without a lover’s touch but only days without a cop grabbing you by the wedgie into a mariamu because you shouldn’t be idle as you wait for your Uber outside Alchemist. Because of course in that time you should take up a sport, play an instrument, solve world peace, et cetera.
There are few occasions when pride will linger. Like when Kipchoge finishes a marathon in under two hours. When Lupita wins an Oscar. The hubris you feel when your copy makes it to the billboard on UN Avenue. Or when your lame joke gets five retweets because Kenyans on Twitter will massacre you if you think you’re the next Churchill. Orrrr that one time we were all watching Money Heist and so gassed that Nairobi was one of the characters.
Sadly, Nairobi pride also comes in with its individualism. Everyone is out here on their own trying to get some bread whether they’re in the upper class getting baguettes and rye bread or in the lower class getting Supaloaf. I get it though, the city doesn’t let anyone rest from the grind and the hustle and the drudgery. And the wealth gap is bigger than Vera Sidika’s bunda. But ironically, the city is a paradox. An optical illusion. Sometimes the people are so ready to convene in community that it kinda revives the fickle hope you have in humanity. From safe spaces to fundraisers to a simple hearty conversation with your Uber driver.
And there’s obviously that murky feeling of greed that comes from 90 per cent of our politicians. When you’re at the bottom of the food chain it’s called hunger, but the higher you climb the more you want and it becomes indulgence. Greed makes them say and do all kinds of things. Like apologising to Arab countries that are exploiting Kenyans because they don’t want to be cut off. Y’all know any juakali guys we can commission for guillotines? – Heads gotta roll. Because how will I steal cooking oil and flour and end up in a cold cell but they’ll steal billions and end up with a second five-year term?
I think wrath is the most Nairobi-esque of the cardinal sins. We’re angry at the police. At the government, at global warming, at nduthis, at KPLC, at Zuku, at Safaricom, at KCB, at each other. Agonizingly though, our anger fizzles out as fast as it blazes up. I don’t think we’re ever angry enough.
And then there’s the envy. You know you’ll get there eventually but that gets lost in translation when you see someone with better because that sparks something in you even though we are all on different paths at different paces. Whether it’s a BMW or an airfryer, the question stays: Why not me? And also I’m personally jealous of the people who’ve managed to move out of Nairobi to Naivasha, Watamu or wherever. It feels like they’ve figured their way out the maze while I’m still at a dead end wondering whether I can just hop out the sides. Doesn’t matter what it is, our eyes are as green as the parks and spaces we so desperately need in this godforsaken city.
Nairobi. The city of miniskirts and cheers baba jackets. Lust dripping down the sides of our mouths because we can’t seem to contain it under our tongues. I don’t even know why people bother to go to Vasha for WRC when they live in the city of sexual debauchery where the only thing that’s on heat more than the sun is whatever’s between people’s legs. Where even Christian Grey would pause and do a double-take. Where ropes aren’t just for skipping and leashes aren’t just for dogs. If you find ordered love in the city, you must have saved refugees and orphans in your past life. This is the city where the flesh is truly willing.
You know that intense sloth-like feeling when you wanna wake up for Sunday brunch at Brew Bistro or K1 and then later watch Hamilton race at around 4 when all the mimosas have hit your head and you’re surprised that your wig is still intact? Or the next day when you’re trying to get out of your covers and you’re thinking about that beastly Nairobi traffic you’re about to face and all you can do is tweet “Nimewacha pombe mimi”. Truthfully though, other than that and a few other instances, the pace is too fast for me. I just wanna be in a dera next to the beach drinking a passion caipiroska and eating viazi karai cause why are y’all always running?
And y’all are way too fast when coming up with new words too. There’s like a million words for currency, ass, sex, sherehe, et cetera. Truly, there is a certain linguistic je ne sais quoi when it comes to the Nairobian’s language. It stops being a transaction of random syllables and begins to become an understanding of feelings, emotions and behaviour. I, especially, like how we knead it into our art. We sneak it into our music and get phenomena like gengetone.
We compress it into our films and get Nairobi Half Life. We squeeze it into our visual pieces and get Michael Soi. One thing about Nairobians is we do not cower in silence, we have words to say and we shall say them. Even if that means running a president out of Twitter. That’s why our writers are as staggeringly sensational as they are. Ngartia. Sookie. Grey. Muthaka. Laria. Abu. And those are just my friends, dawg.
But it’s not just the writing. The fashion. Rosemary Wangari. Nicole Wendo. Samantha Nyakoe. The music. Mau from Nowhere, Vallerie Muthoni, Karun, Maya Amolo, XPRSO. Just a Band. The films. The painting. Muthoni Matu. Zolesa. The architecture. The cinema. The theatre. Too Early for Birds is back! et cetera. Man, I gotta tell ya, when God was cooking up the cauldron of this city, he went hard on the talent. Quote me on this: a lot of exceptional creatives from this city are gonna hit the world with a head-splitting bang in a couple of years.
Nairobi. Despite the crowds, the queues and the poor drainage, it still has a charm. Mysterious. Confusing. Alluring. Despite the fact that you can only truly enjoy the Nairobi experience if you’re a bird or an expat, me I love it still.
Nairobians, keep sinning, keep winning!
The Enemy Within
Death hangs heavily over people with cancer – it is always there, reminding you of your mortality.
So, this is what happens when a doctor tells you that you have cancer. The first response is disbelief (how can this be true?), followed by anger (I don’t deserve this, I never hurt anyone), and then a deep sense of grief and loss (what will I miss when I die, and how will my loved ones cope without me?)
They say cancer is the result of pent-up anger and resentment. Apparently, years of holding on to these emotions make your cells misbehave and become toxic. Cancer cells end up eating up healthy cells, leaving the body so full of poison that it collapses from lack of vitality. The jury is still out on whether lifestyle choices generate cancer in the body because people who lead healthy lives seem to be as prone to cancer as those who don’t. Nonetheless, when you find out you have cancer, your first reaction is to blame yourself. It is sort of like being told you have HIV. (Was I responsible for this? Was I reckless? Should I have used a condom?)
Friends and relatives will tell you that breast cancer is beatable, that they know so many women who had breast cancer and lived healthy lives years after treatment. What they don’t tell you is that all the literature points to a short life expectancy after the discovery of cancer. The chances of recurrence are high, even with chemotherapy, mastectomy or radiation, the traditional methods to “cure” breast cancer. I have read studies where women who had chemotherapy had an equal chance of recurrence as those who didn’t. So, death hangs heavily over people with cancer – it is always there, constantly reminding you of your mortality.
Most people are so afraid of cancer that they can’t even say the word. The receptionist at an oncologist’s office actually asked me what kind of “C” I had – never used the word cancer. Yet she deals with cancer patients every day. Another oncologist I consulted couldn’t even make eye contact with me and rushed me through a diagnosis I couldn’t understand, perhaps believing that my cancer was contagious?
The thing is that cancer is not like any other disease that can be cured through surgery or drugs. It requires months of treatment and constant monitoring. It’s not like having malaria or a broken bone. It is like having an enemy residing in your body, hostile, predatory, waiting to pounce at any moment.
It seems a positive frame of mind is critical in recovering from cancer. I got calls from women who told me they bounced right back into their lives after months of treatment as if nothing had happened, that I mustn’t believe all the literature, that I should get all the treatments done and go back to living a normal life. They didn’t explain to me why they have been working from home since their treatment started and since their so-called “recovery”. Others are more honest about their experiences. A South African women called to tell me that her experience with chemotherapy had damaged her heart, and she is on life-long medication that makes her urinate every few minutes, which means she can no longer work in an office. Instead of destroying the cancer, the chemo destroyed healthy cells in her heart. She is cancer-free but now disabled in other ways. Another friend told me her aunt died not from the cancer, but from the chemo.
What the doctors and the optimists don’t tell you is that both chemotherapy and radiation have debilitating impacts on your body. They literally are poisons injected into your body to kill another poison. Sort of like a vaccine but not quite because they do not boost your immunity. Both chemotherapy and radiation therapies involve weeks of hospital visits that cost an arm and leg. Nausea, burns on your body, fatigue are common side effects.
A friend from Boston who has studied alternative ways of healing from cancer (including not getting any treatment at all) tells me that each woman with breast cancer has to make an individual choice about what kind of treatment she should get. Doctors trained in Western medicine will be quick to put you on chemotherapy and the other treatments without giving you other options. Desperate and eager to cling onto life, the patient with cancer readily accepts any treatment, not realising that not only is it a very long process, but very costly as well. Mental preparation and psychological support are also necessary before embarking on the long and arduous journey called cancer treatment. People become life-long patients; some recover well, others not so well. Some women opt for no treatment, preferring to lead a good quality of life before the disease ravages the body.
I am looking at alternative methods of healing, including Pranic healing that works on your energy fields and chakras. So far it seems to be helping me, but only time will tell if I will be a success story. I have certainly started eating more, and those dizzy spells in the morning seem to be getting rarer.
The biopsy results are not yet out, so I am still not sure what the oncologist will prescribe, but in Kenya, the modus operandi seems to follow the same script: mastectomy, followed by chemotherapy or radiation and some kind of hormone treatment. Am I ready to go there? Not sure. Women who lose their breasts speak of feeling like an amputee; the loss of an organ that defines their femininity impacts their identity and self-esteem. Others are more casual about losing their breasts, (“It’s just fat,” one woman told me). `
The other thing about cancer is that when you have it, you think of nothing else. Everything is a blur. Someone wants to make small talk, and all you want to do is look the other way or scream. (Can’t you see I have cancer? Do you really want to discuss the weather?) You think about your life in vivid film shots. Your past suddenly comes into sharp focus, both the happy and sad days. You begin questioning the meaning of life in ways you never did before. Cancer prepares you for death the way a fatal car accident doesn’t. Is sudden death preferable to dying slowly because you can’t see it coming? Not sure.
But let me not be the purveyor of doom and gloom. The reason I am writing this article is that I have learned wonderful things about myself and other people. One of the things I have learned is that people can be kind and generous when they know you are in pain. People I don’t even know and have never met have sent me good wishes, prayers and even money for my treatment. Friends and family have sent food and offered accommodation. An Indian friend called to say that if I opted to go to India for treatment, I could stay in his home for as long as I needed. These generous and kind offers have literally brought tears to my eyes.
What I also learned is that my life’s work has not been a waste, and that my readers love and admire me for my writing. I didn’t realise I had inspired so many people, not just in Kenya but around the world, through words I have penned. That is a really important things for me to know and hold onto right now – to realise that I had a gift that I used well, and which helped others. And to know that when I go, my writing will live on.
I also learned that life is very, very short. So, we must not postpone the things we need to do. If your job makes you unhappy, quit. If a relationship is toxic, leave it. If people around you are making you feel bad about yourself, walk away. Surround yourself with people who love and cherish you. Love is very important for human survival, so distribute it freely. Be kind and generous. This thing called life is temporary, so enjoy every moment and live it as if every day is your last.
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